Useful links

Useful Links

Organisations:

Crohn’s and Colitis UK – Crohn’s and Colitis UK aims to improve life for everyone affected by IBD. They raise awareness, provide information and support, fund crucial research, and campaign and speak up for change. www.crohnsandcolitis.org.uk

Crohn’s and Colitis Relief (CCR) is a Jewish organisation based in Stamford Hill and was set up to improve the quality of life of people affected by Inflammatory Bowel Disease as well as related illnesses.

Since the diagnosis of Inflammatory Bowel Disease can initially prove overwhelming for a family, CCR’s dedicated group of family support workers is available to help families to understand the condition, offer informed answers to questions and suggest further sources of support. Services include:

Hospital Advocacy   Medical referrals   Support groups

Diet groups   Private health insurance   Social and welfare advice

Contact CCR on 020 3652 1101 or email info@theccr.co.uk

 Crohn’s & Colitis Foundation‘s mission is to cure Crohn’s disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases. The Foundation offers helpful educational resources to help patients cope with these diseases and better manage their health. To gain access to their educational material, please visit: http://www.crohnscolitisfoundation.org/

ForCrohns‘s mission is to fund research that helps those with the condition today and contributes to finding a cure for Crohn’s disease in the future, whilst making more people in the UK aware of the disease and its symptoms.  http://forcrohns.org

They have recently published “Book for Crohn’s,” written by the Crohn’s community for the Crohn’s community, which can be purchased by clicking on the link below:

https://www.amazon.co.uk/gp/aw/d/1500601691/ref=mp_s_a_1_1?ie=UTF8&qid=1500320816&sr=8-1&pi=AC_SX236_SY340_QL65&keywords=book+for+crohns&dpPl=1&dpID=51cB4U3Y3NL&ref=plSrch

Crohn’s in Childhood Research Association – CICRA raises funds to support approved medical and scientific research aimed at finding more effective treatments and an eventual cure. CICRA also provides support for affected children and their families, in the form of booklets and newsletters, which are freely available to sufferers. www.cicra.org

Colostomy Association – They offer support, reassurance and practical information to anyone who may be about to have, or already has a colostomy. www.colostomyassociation.org.uk

IA – Ileostomy and Internal Pouch Support Group is a mutual support group which has the primary aim of helping people who have had their colon removed. www.iasupport.org

Camp Simcha – Camp Simcha exists to improve the quality of life of children suffering from Cancer or other life threatening illnesses. Their support extends to children from 0 – 18 years of age, with any form of cancer or any other condition that represents a threat to life. Recently they have extended their services to include cases of severe inflammatory bowel conditions. www.campsimcha.org.uk

Chana supports couples in the Jewish community who may feel isolated and need medical information and support to help them deal with the challenge of infertility.  www.chana.org.uk

Guts4Life – Guts4Life provides information and support for people with Inflammatory Bowel Disease. Browse the site to find information about bowel problems, different types of IBD, or tips on how to live with IBD. http://www.guts4life.com

CCFI – The Israel Foundation for Crohn’s Disease and Ulcerative Colitis  is the only organisation in Israel that provides continuous support and comprehensive services to IBD patients and their families. If you are travelling to Israel and have any IBD issues whilst you are there, the Crohn’s and Colitis Foundation of Israel can help.  Their hotline is available Sun – Thurs from 7pm – 10 pm.  Telephone: 00972-3-7441391. Most of their volunteers speak English. Their website is www.ccfi.co.il.

Services:

Yourhealthstore stocks a wide variety of gluten-free products including matza, crackers and snacks, as well as fresh gluten-free challas every Friday.

They also sell a specific strain of probiotics that are particularly recommended for IBD sufferers to help improve symptoms – ask in store for more details.

Tel: 020 8455 7766
mori@yourhealthstore.co.uk
135 Hamilton Road, NW11 9EG

Facebook pages:

Crohn’s and Colitis UK – https://www.facebook.com/crohnsandcolitisuk?fref=ts

Crohn’s and Colitis UK Forum – https://www.facebook.com/groups/CCUKforum/

Crohn’s & Ulcerative Colitis Support Site – https://www.facebook.com/groups/crohnsandulcerativecolitisirelandpartnersupport/?fref=ts

Crohn’s and Colitis Awareness – https://www.facebook.com/CrohnsColitisAwareness?fref=ts

 

The Crohn's and Colitis Charity

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